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    • Our Team
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      • About One Rare Experience
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      • 2020 Agenda
      • 2020 Speakers
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      • About One Rare Adventure
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Check It Out!

One Rare 2022 Programs Register and Apply!

One Rare 2022 Programs Register and Apply!One Rare 2022 Programs Register and Apply!One Rare 2022 Programs Register and Apply!

One Rare Experience 2022: Empowerment, 

July 20-24, Virtual

One Rare Adventure, Adaptive Kayaking Trip, August 11-14, In Person

ONE RARE EXPERIENCE: EMPOWERMENT - VIRTUAL - REGISTE NOW!
One Rare Adventure: Adaptive Camping Trip - In Person - Apply Now!

About One Rare

Back in 2019, One Rare was founded by a mother and her adult son living with Duchene muscular dystrophy. The goal was to provide resources and opportunities that would improve the lives and futures of young adults, aged 18-35, living with rare disease, through education, mentoring, recreation and peer support.
 

While there are many supportive programs for families and children impacted by rare disease, teens and young adults often age out of programs when they need them the most. One Rare strives to provide relevant resources and opportunities for this community ranging from guidance on transitioning to adulthood to physical, mental and emotional self-care, networking and navigating social interactions, developing professional skills, navigating today’s healthcare systems, personal and patient advocacy, and general pursuit of happiness through mindful recreation and creative expression.


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