Our 2023 One Rare Experience (ORE) will be July 27-30, 2023 at Bridgewater State University and the theme is Building Community. This year's ORE is an epic 3-day event and will include workshops, events, panels and lots of fun. Some of the topics covered will be: 

• Building community and connections
• Participating in clinical research
• Participating in the workforce
• Building a resume
• Participating in a patient advisory board
• Comedy
• Game facilitation

Check out the detailed 2023 agenda>>

About One Rare Experience

One Rare Experience is a free program for young adults with rare conditions working towards fulfilling One Rare’s mission to improve experiences for this community through education, mentoring and peer support. Our inaugural event was scheduled for August 2020. As we set out to plan this first event, the COVID pandemic required us to quickly shift to a virtual format. Imagining this event being virtual was challenging at first, but our team worked hard and pivoted towards an online format and our efforts were rewarded and appreciated through the great feedback we received from our participants. One Rare Experience will be held annually, with a goal to have the event offered in-person and virtually going forward. Programming will focus on lifestyle and health, expression, art, and employment as well as free time to network, build social connections, and form friendships.